Kandhamal Child With Rare Genetic Disorder; Actor Sonu Sood Comes Forward To Help

Actor Sonu Sood came forward and sought help from fellow countrymen to donate whatever they can to treat one and a half year old Rajveer from Ambapada village in Kandhamal who is suffering from a rare genetic disorder.

According to the official reports, the parents of Rajveer reached out to Sood in Mumbai for help and in turn, he requested all to donate whatever they can for Rajveer’s treatment. He has been suffering from Spinal Muscular Atrophy (SMA), a rare genetic disorder where a person can’t control the movement of muscles due to the loss of nerve cells in the spinal cord and brain stem.

In a video message, Sonu Sood said, “We have seen in the past what public cooperation can do. People have been cured of this disease before. So, I request all to come forward and donate as per your capacity so that the child gets a new life.”

Rajveer’s health is deteriorating due to which he urgently needs a Zolgensma injection, which costs Rs 16 crore. The injection has to be imported from the US and the doctors, who were treating Rajveer in Bangalore, have given a deadline of four months for the administration of the life-saving injection.

The report further added that the couple has begun a campaign to raise funds worth Rs 16 crore for the treatment of their son. But with such huge amount it is getting difficult for both the parents to raise the money in short time, so they have asked help from Odisha Chief Minister Naveen Patnaik for the treatment.

 

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